Category Archives: Struggling Life

The Blame Game – My Special Education, Lesson #12

Jon Me IHOP 11-2015It’s no one’s fault,” the doctor in my hospital room said, the morning after our son was born. “These things just happen sometimes.”

Our newborn baby had Down syndrome and as the doctor began to explain the possible long term outcomes for him and our family, my heart raced in panic. My mind filled with a cloud of fear.

“NO! This can’t be happening! Not to my baby! Not to me! Not to us!”

Isn’t that how it goes when we’re faced with circumstances beyond our control? When our carefully thought out plans are suddenly ambushed?

We’re cruising through life, a few bumps and glitches here and there, but nothing we can’t handle. Then suddenly..Wham!!

We find, not just the proverbial rug pulled out from under us, but the floor too. The ground has just opened up and swallowed us whole!

And when we’re done free-falling, we have to find a reason. The ‘Why’ must be answered. It has to be SomeOne’s or SomeThing’s fault.

A friend sent me a card once that read, “Life is all about how you handle Plan B.”

Plan A is what you want. Plan B is what you get and I wasn’t dealing well at all, with what I got.

I fell into absolute despair trying to figure out what I did to cause my child’s disability. For months it filled every waking moment and many sleepless nights. Those pesky, “I should have” and “I shouldn’t have” scenarios, plagued my thoughts constantly.

There was plenty of help in the guilt department from well meaning folks. Everything from, “You should of eaten more potatoes while you were pregnant,” (no kidding) to “You must have bad sin hiding someplace in your life for God to punish you like this.”

Apparently there was a rash of babies born with Down syndrome at the time. In an attempt to find a common denominator (or something to blame) the Department of Health and Human Services for the State of New York called when Jon was about a month old to ask if they could survey me.

“Do you live near power lines? How long have you lived there?”
“Have you ever taken drugs? Did you take drugs while pregnant?”
“How often do you drink alcohol? Never? Occasionally? Once a week? Everyday?”
“What kind of make up do you wear? What brand of laundry detergent do you use?”

After an hour long barrage of questions, I hung up the phone more convinced than ever I was the cause of my son’s diagnosis.

When I finally gave up blaming myself I turned my angst on God. He could have prevented this but didn’t. It was His fault and I was mad. What kind of God did I believe in anyway? An overwhelmingly devastating question for me, since we were fresh out of Bible college and my husband was just beginning a lifetime of pastoral ministry.

Though it seemed artificial to be so angry at God when my husband was a pastor, and I, the pastor’s wife, anger was all that made sense at the time. It was the easiest life raft to cling to.

We see it in the daily news continuously. A crisis occurs, a shooting, tornado, flood, fire, mudslide, plane crash, death, violence or destruction. The talking heads start in, opinion-ating, analyzing, philosophizing and finally conclude with, “Something must be done to make sure this never happens again.”

Either people want to believe they have this much power, this much control, or placing blame is just a coping mechanism for the unanswerable and unexplained.

Sometimes there is someone to blame but more often not. Sometimes stuff just happens because we live on a fallen, broken and sin cursed planet.

Finding possible solutions is useful but the blame game often goes around in a monotonous circle until we are divided and estranged, from each other and from our only source of hope. God.

It seems God is blamed for most everything that goes wrong, by people who barely acknowledge His existence the rest of the time or bother to thank Him for any of the good and right in life.

In his book, Reframe. From the God We’ve Made to the God With Us, Brian Hardin said it this way: “We don’t usually start with God, but if we can’t find an answer we often end up there. God has become the cosmic trash heap for all humankind’s unexplainable suffering. He’s apparently got His hands in everything from tornadoes to human trafficking. From cancer to the reason the car wouldn’t start this morning. And this is the God we’re supposed to be in a relationship with?”

If there’s one thing I’ve learned, it’s this: I can’t control everything that happens to me, to those I care about or to the world at large. And I don’t have to figure everything out, don’t have to know all the answers.

I only have to admit and own what I’m responsible for and trust my Heavenly Daddy has a greater plan and purpose than I can see.

He will bring justice in His time. He will make everything right in His way and acceptance of this truth, deep in my heart and soul, not just my head, brings peace in a frenzied world.

And for all my initial distress, despair, crying, sighing, shouting and blaming, my son turned out to be a blessing, a unique treasure God values and loves. Someone who is always teaching me the art of selflessness, drawing me closer to the heart of my Father.

I eventually laid it down, the miserable scrutinizing, finger pointing and fretting over who or what was at fault. It was exhausting and served no purpose. Blaming drained life from me and returned nothing.

The blame game was over and I lost.

But I’m no longer a sore looser, just a grateful one.

 
Job 40:1-5 The Lord said to Job: “Will the one who contends with the Almighty correct him? Let him who accuses God answer him!” Then Job answered the Lord: “I am unworthy—how can I reply to you? I put my hand over my mouth. I spoke once, but I have no answer—twice, but I will say no more.”

Romans 9:20 “Who do you think you are to talk back to God like that? Can an object that was made say to its maker, “Why did you make me like this?”

John 16:33 “I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”

My Gnat Confession

scary-gnatCleaning Jon’s room makes me mad! I’m confessing, putting it out here for all to read.

Every time I clean his room I battle a huge bad attitude. One way to deal with my anger has been to give it a name, “The Landfill”, and to play worship music on my iPad as loudly as possible while cleaning.

The past few days we’ve been seeing little gnat things flying around the house and couldn’t figure out where they were coming from. I do a quick check in Jon’s room every other day or so, making sure nothing’s growing or moving that shouldn’t be and about once a week, do a more thorough clean and sheet change.

Yesterday, I decided it was “Landfill” cleaning day. Mike was home so he helped me with the vacuuming and I was sorting through Jon’s usual piles of stuff on the floor and in crates making sure everything was kosher, when I found it buried under a pile of stuffed animals, a personal size Rubbermaid cooler that he had taken from a cabinet in the laundry room.

I opened it to see what was inside and a fleet of gnats flew up in my face. After they lifted off, I noticed the bottom of the cooler was alive and moving with hundreds of little gnat larva. They were living off some sort of food science experiment growing in there.

Horrified, I screamed, slammed the top shut, grabbed it, ran to the front door and heaved the cooler as hard as I could into the yard. I slammed the front door closed and jumped around in the foyer for a few minutes, totally grossed out, itching, shaking and hollering, trying to get hallucinatory gnats off of me.

Once that subsided, incredible anger took its place. I stomped into the kitchen and yelled at Jon for two minutes straight while he stared at me like I’d just lost my mind then I went back in his room, still freaking out, and tried to tell Mike I’d found the source of our gnat invasion.

“I can’t hear anything you’re saying. You’ve got the music so loud it sounds like a Pentecostal church service in here. Turn it down so I can hear you.” Mike hollered over the music.

I yelled back, “Listening to that music is the only way I get through cleaning this room so you best be glad it’s playing. I’m so mad right now if that music shuts off I’m gonna’ smack someone, and hard!”

We scrubbed the daylights out of Jon’s room for the next hour. I reluctantly searched every nook, cranny, box, crate, bag and pile in there and in his bathroom. I threw every thread of bedding and fabric I could find in the washing machine and got Jon in the shower. He even let me wash his hair, possible penance for what he’d just put me through, though I’ll never know for sure.

A few hours later, after I was sure everything was clean and back in order, I finally calmed down.

Last night I prayed. Though yesterday’s clean was more than unusual, I asked God to show me why I become so angry every time I clean Jon’s room.  God knows my heart better than I, and I want to understand what is triggering this anger inside of me.

The answer came in my prayer as I poured my heart out before my Heavenly Daddy.

“He’s thirty five, I shouldn’t have to still clean his room and it’s not fair that I do. We should be empty nesters now and only cleaning kid messes after grandchildren visit.”

As much as I love my son, cleaning his room is evidence that this didn’t turn out as I’d hoped and hope disappointed triggers many reactions and emotions. We often don’t recognize their source.

Like we didn’t know where the gnats were coming from, I didn’t know where my anger was coming from until I searched, until I asked.

Now that I know, God and I can start working on it together; one more area where grace can replace reaction, where a servant heart can replace selfishness.

Recognizing my shortcoming is the first step. Asking God to help me change is the second. He loves me too much to leave me as I am, yet He is gentle enough to expose and change my selfish heart one layer at a time, even if it takes a plague of gnats to motivate me.

Confession is good so I pray I’ll soon have a heart of joy and a song of praise at all times, even in “The Landfill”.

But. Please. Lord. (Shivverrrr) minus all creepy, crawly, cringy, critter things!

Psalm 139:23-24 “Search me, O God, and know my heart: try me, and know my thoughts: And see if there be any wicked way in me, and lead me in the way everlasting.”

Ephesians 4:26 “Be angry and sin not, don’t let the sun go down on your wrath or give place to the devil.”

James 5:16 “Confess your faults one to another, and pray one for another, that you may be healed.”

The Unapplauded Hero

super-hero-cape-flying-SupermomI met a Hero the other day.

She is twenty five years old.

She’s put aside her own hopes and dreams to care for a chronically ill family member.

She’s had to quit her job because the care needs are so time consuming.

At an age when she should be having fun, dating, building a future, career or a family of her own, she cares full time for someone in need.

She cries when no one is watching.

She wonders what the future holds.

She worries what will happen to her loved one.

She worries what will happen to herself if something happens to her loved one.

She feels guilt for wanting more.

She doubts God at times.

Her faith wavers even as she continues believing.

She is a full time caregiver. Someone desperately needs her. She is there.

She is learning at a young age the hardship and beauty of a laid down life.

If you are a single young man you might want to consider a woman like her.

She won’t have much time to date, but she certainly knows about loyalty, selflessness and love; all the qualities that make a great spouse.

She’s the unapplauded in the background. One who performs the mundane today, tomorrow and the next day.

But mundane is greatness when executed so selflessly.

Those who are faithful in little things will be rewarded with much (Matthew 25:23, Luke 16:10).

She will be honored for her faithfulness.

Man may overlook.

But God sees.

He sees it all.

He sees her.

She is brave.

She is strong.

She is incredible.

And He calls her Beautiful.

My New “I Don’t Get It” Box

box copyI now own a virtual “I Don’t Get It” Box. It was delivered to me over the weekend after a conversation I had with a good friend. She’s had a tough year and great loss.  We talked about  faith, and how it processes us through life circumstances that are more than difficult.

Sometimes stuff happens that doesn’t fit into our neat and tidy theological boxes. We can’t check them off our doctrinal lists. Things happen that we can’t explain and we have no idea which  (thought-I-had-this-all-figured-out-already!) category to file them under.

After this conversation with my friend, I woke up the next morning with a picture in my head. Some people call them visions or awake dreams. Call it whatever you want, but I saw me with a long line of people stretched out endlessly behind me, standing in front of a huge box inscribed with a large glowing font that said,

“I Don’t Get It.”

Everyone in line, including me, had a piece of paper in hand. I had written on the paper, parts of my life I question, things I don’t understand and circumstances I have faced or still face that are confusing and seem to have no answers.

I stepped up to the box and threw my paper in. When it hit the bottom the font on the front of the box changed and began to flash in bright neon over and over again,

“Just TRUST Me. Just TRUST Me. Just TRUST Me. Just TRUST ME….”

I may not ‘get’ many things but I get this message loud and clear. I don’t need to analyze, understand, explain and figure everything out.

I can’t know everything because knowing ALL would make me God. Wasn’t that we could be like God by eating the only off limits fruit from the tree of knowledge of good and evil, the original lie of the serpent?

Man fell for the deception. He believed it. Do we still?

God wants our trust. He wants us to believe Him. It’s all He’s ever wanted. So I lay aside my need to know and simply trust..

Because God,

I believe You are good.

I believe You are love.

I believe You are faithful.

I believe You are merciful.

I believe You desire only the best for me,

Today, no matter what happens, how I feel, whether I understand or not, I throw it all into my “I Don’t Get It” box and…

Just Trust You!

 “You will not certainly die,” the serpent said to the woman.  “For God knows that when you eat from it your eyes will be opened, and you will be like God, knowing good and evil.” Genesis 3:4-5

 “Those who know your name will trust in you, for you, LORD, have never forsaken those who seek you.” Psalm 9:10

 “Trust in the LORD with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight.” Proverbs 3:5-6

“Do not let your hearts be troubled. Trust in God; trust also in me. John 14:1

 

 

 

 

 

 

 

 

 

Saying Goodbye

We said goodbye to our dear friend, Harold, recently. He left this earth to take up residence in his eternal home.

It’s hard to say goodbye.tree

In my saddened state, I’ve been thinking about death, as we are prone to do when someone we love passes from this earth.

Why is it so hard for us? Why does it rattle us to our very core? We all know death comes. Not one of us escape it.

Yes, I understand the separation and loss, the vast empty place the removal of someone who was so much a part of us creates. But it seems our struggle with death is even deeper than those things.

And it is. Because death was never in God’s original plan for us.  He originally created man to live forever in a perfect body on a perfect earth. In the deep places of our being, we know we were never meant to taste death or experience it.

God told the first man and woman, “Don’t eat of that tree, if you do you will die.” He offered choice. And they chose to listen to the lie. They ate and the journey of life to death on this earth began (Read Genesis 2:15-3:24).

I used to wonder why I should suffer for what the first man and woman did. That was their choice not mine. It’s like the school teacher punishing the entire class for the behavior of one child.

“Therefore, just as sin entered the world through one man, and death through sin, and in this way death came to all people, because all sinned.” Romans 5:12

God hardly seemed fair in dolling out sin curses for generations to come when I never had a chance to decide whether I would take a bite from that fruit or not. If I was in The Garden I would have chosen to do the right thing.

But would I? Would any of us? Do we now?

How many times have I chosen my will over God’s, exalting my selfish desires over His, justifying what looks good to me over His perfect best? I wish I could say never, but the truthful answer is, I’ve lost count.

So God knew man would choose death. He knew it when he created us but did it anyway just as we take the risk of having a child with no guarantee of the outcome. It’s done from of a heart of love. We sacrifice for that child to have every advantage, every good choice and our heart breaks if they choose a path leading to their downfall, hurt or destruction.

But thank God, we are not left stranded, without hope, “For as by the one man’s disobedience the many were made sinners, so by the one man’s obedience the many will be made righteous. so that, as sin reigned in death, grace also might reign through righteousness leading to eternal life through Jesus Christ our Lord.” (Romans 5:19 & 21).

God came to our planet, took on a flesh suit and became like us to provide a way back to immortality and perfection. He became one of us to rescue us from eternal death. He made a way of escape from the ravages of sin and death through the sacrifice of His son, Jesus, who was nailed to a tree. For you. For me.

Death started and ended with a tree.

The choice returns, but the subtle injection of doubt continues through time. “Did God really say?” (Genesis 3:1). Do we believe in Jesus or do we continue to believe the lie, the illusion, the trick that we can be our own god, that we can still eat the fruit of a life apart from Him and suffer no consequences?

We all die physically and leave this planet, but believing the truth of who Christ is and what He did for us, assures us that is not the end, only a transition to a new life; the beautiful and glorious life we were always meant to have.

We’ve had to say goodbye to our friend for now, but hope comes in knowing I will see him again when it’s my turn to leave here. Maybe instead of goodbye, I should just say,

“See ya’ later, Harold. Save me a seat on that bench. Underneath The Tree of Life.”bench

1 Corinthians 15:26 ” The last enemy to be abolished is death.’

John 3:16 “For God so loved the world that He gave his only Son, that whoever believes in Him will not perish, but have everlasting life.”

 

                                                                                                        photos courtesy of picjumbo.com

My Hands His Hands

We celebrated another wedding anniversary recently and as I dusted off our wedding album to reminisce, I smiled, flipping through the photos.

Until I came to this one on the last page, this close up of our hands showing off our new wedding rings.hands

‘Oh My Gosh!’ I thought, ‘My hands were so pretty and so straight once.’

Six years after that photo was taken I was diagnosed with rheumatoid arthritis. A crippling auto immune disease  triggered at the birth of our first son and ten years later, ravaging through me like an eighteen wheeler squashing a bug, following the birth of our second.

As much as I wanted to, I didn’t have time to stay in bed and it really didn’t matter, staying in bed hurt just as much as being up. Painful nights without sleep and miserable exhausting days were measured on a pain scale of bad and horrible, making the bad days seem good.

My family needed me and with two active growing boys to care for, prayer and pills became my constant companion. Pain pills, steroids, low dose cancer drugs and weekly injections all kept me in function mode. My continuous prayers went from begging God for healing to demanding my body stop its destructive storm, and everything in between.

As the disease progressed the cartilage and fluid cushion between joints eroded. Fingers and toes began to drift, tendons shifted and bones fused. Slowly I was forced to give up activities I enjoyed; skating, tennis, playing guitar, clarinet and keyboards, hiking, wearing sexy shoes, doing my nails and many more.

The day I went to have my wedding ring cut in half to remove it from my swollen, misshapen finger was the culmination of how much rheumatoid arthritis had stolen. I cried tears of bitter resignation.

Since then, I have made drastic changes which positively affected my health: our family moved to a warm climate, I renovated my eating habits, began light daily exercise and the practice of stress release through prayer, meditative scripture reading and writing, laughing often, letting go of offense, forgiving, listening to my body, pacing myself instead of pushing, saying ‘No’ when necessary, asking for help when needed and giving myself permission to have fun.

Over the span of several years, I gradually reduced the amount of medications and have been off all drugs for a decade. But until God heals me completely, the joint damage remains.

As I looked at that picture of my normal hands, a stark reminder of what once was, I realized I rarely think of it now. I’ve adjusted, adapted and moved on.

My hands aren’t pretty. I know that. They are crooked and disfigured. But they still function, awkwardly managing to do what needs to be done.

They can still plant a seed or cut a flower in the garden, sew a stray button back on, slice an onion in the kitchen, butter toast, throw a load of laundry in the machine, reach for another person needing prayer, comfort or hugs, type this blog (two fingers at a time) and perform so many necessary tasks.

I’m far from the young girl in that picture now. I can’t go back there nor do I want to. Those days are gone and as the years roll by I am learning to be thankful for what is. Today. Right now.

I am learning to trust God in all things – understood or not, healed or not – big or small.

I’m grateful I still have hands. Crooked as they are, they belong to God.  I will use them to bring help, blessing and hope to others as long as I can. And I will raise them in worship and surrender to Him as long as He gives me breath.

Whether I’m healed on this side of eternity and in spite of the affliction and problems of this life, I choose to proclaim with Job of old:

“As for me, I know that my Redeemer lives, and that as the last He will stand upon the earth. And after my skin has been destroyed, yet in my flesh I will see God, whom I will see for myself, and whom my own eyes will behold, and not another.” Job 19:25-27

Lessons From A Hurricane Summer

The year 2004 was what I call Florida’s Hurricane Summer. Four hurricanes plagued us in a span of about six weeks.Hurricane Charlie damage 8-04 042

Exactly ten years ago today, Hurricane Charley, the storm that initiated the chaos, ripped through Central Florida. We were living in Kissimmee at the time in an older neighborhood with large lot lines. Our unique property, tucked away in a corner, consisted of two acres, a ranch style three bedroom, two bath main house with a pool and a detached, cozy one bedroom, one bath guest/in-law house out back, several sheds and a separate screen room where our hot tub lived.Hurricane Charlie damage 8-04 014

The property backed up to a conservation area and was surrounded by lush jungle on all sides; thick Florida flora of wild palm trees, palmetto, gigantic oaks and hanging moss. Some people thought it scary and worried about what lived in those woods. Not me. I thought it was beautiful, until Charley. We moved to Florida in 2001 and had never been through a hurricane before, but as I looked out at all those trees, I began to wonder what they could crush if they started falling.

The weather predictors vacillated for days over the path Charley might take, but when we finally knew the storm was coming for us, our family gathered in a tight circle and prayed for protection. Jon disappeared into his room and taped a paint stick perpendicular onto a yard stick forming a cross. He came back out and leaned it against the patio doors, his way of demonstrating God’s watchful eye over us. He then went back in his room and refused to come out. I found him lying stiff as a board on his bed wearing a bicycle helmet, a jacket, and a pair of boots, clutching a flashlight.

We’d had a new roof put on the main house a few months prior and fortunately never lost one shingle, unlike many of our neighbors, but the contractor forgot to nail down the three brand new skylights he installed and they blew off as Charley came barreling through. Rain was pouring into both bathrooms and the breakfast nook and it seemed as if the wind would lift the roof right off the walls.

I ran to the storage closet and found some old plastic shower curtains and a large piece of clear vinyl, while Mike went out in the garage to retrieve his staple gun and an eight foot ladder. Wind was battering the garage door so hard he thought it would blow in. He quickly climbed over potted plants and outdoor furniture we had brought in from outside, to get to his tool chest. As hurricane rookies, we never thought about keeping the tool chest where it could easily be reached.

Our son David, who was fourteen at the time, climbed up into those wide open ceiling holes in the middle of the storm to staple the plastic down. The pool solar panels had come loose and were flopping back and forth on the roof above his head. I held the ladder and prayed like a crazy woman for the panels to not slam through the roof opening and hit my son in the head, while the wind and rain roared around us.Hurricane Charlie damage 8-04 017

By the time the storm passed it was dark outside and the power was down. We decided to wait until morning to go outside and access the damage. Neighbors went door to door with flashlights making sure everyone was alright.  We didn’t sleep much that night or the nights that followed

It was a crazy, difficult time for many here in Central Florida. Our electricity was out for two weeks in the middle of Florida’s hottest summer month.Guest house access blocked & smashed shed

But I learned to be grateful for things we Americans take for granted everyday:

Water that comes from our faucets for bathing, cooking, cleaning, drinking. Without electric, our well pump was off and we had no running water in either house. I discovered how basic water is to human existence and realized I could live without many of the things we consider essential. I never want to be without water again. Every morning when I get in the shower and warm water runs over my sleepy body, I thank God for running water.

Air conditioning in a summer climate that reaches into the mid to high nineties with humidity levels to match. The sheets felt wet when we lay down on them at night. The spices in the cupboard clumped into one large blob in their containers. We never sweat so much in all our born days. We all smelled bad, looked bad and were hot and miserable. I thank God every summer for AC.

Garbage collectors became the most important people in the world. When all the food in the fridge spoils and there’s no trash collector to come haul it away, it’s not pleasant or pretty. Every week when I hear the trash truck stop at the end of our driveway I am grateful for those who do this vital work.

Uninterrupted family time. Without TV, computers, phones or modern distractions we spent time playing table games by candle light, reading, talking and working together. David found Mike’s old guitar in a closet and a hurricane catapulted our son’s love affair with music into overdrive. He now plays, writes and arranges his own songs (listen at daveconnis.com).

Safety of family and friends. Trees went down all around us, but the only structure crushed under a falling tree was one shed. It took months of cutting and clearing to rid our property of broken and fallen trees but my family, friends and neighbors were safe. No one was hurt. I am thankful everyday for the health and safety of those I love.David's tree removal service

Looking back on it ten years later, Hurricane Charley is like the opening line in Charles Dickens’ famous novel, A Tale of Two Cities.

“It was the best of times; it was the worst of times.”

I hope to never go through a storm like that again but here’s what I know, storms of all kind come and go. No one likes them, but we learn our greatest lessons in the middle of them. If we hang on through the blustering wind and pelting rain, pray and trust God we come out on the other side..

Humbler

Wiser

More thankful

And a little more storm proof than we were before.

Nahum 1:7 (ESV) The Lord is good, a stronghold in the day of trouble; he knows those who take refuge in him.

Matthew 8:23-27 (ESV) And when he got into the boat, his disciples followed him. And behold, there arose a great storm on the sea, so that the boat was being swamped by the waves; but he was asleep. And they went and woke him, saying, “Save us, Lord; we are perishing.” And he said to them, “Why are you afraid, O you of little faith?” Then he rose and rebuked the winds and the sea, and there was a great calm.

2 Corinthians 4:17 (ESV) For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison

 

 

I Am Enough – Secret Prayers of an Overtime Mom

hello_6 copyIt was pastor appreciation Sunday. I sat in church next to my husband with the rest of the pastor staff scattered across three sections of front row seats. A large basket was in the foyer, a place for people to drop cards and notes for the staff and someone was in the pulpit speaking words of blessing and thanks over our lead pastor and his family.

But my mind was elsewhere, still home with Jon. Lost in the rough week we’d had together. There’d been extra struggles and a few wandering episodes. I felt wearily overwhelmed and as I fought back tears, sent up a silent prayer to my Heavenly Father.

“God, I’m so thankful for this church family where we’re blessed to serve. This appreciation thing is great but what I really need to know is You’re pleased with what I do everyday with Jon.  I know taking care of him is my top priority but some days are such a struggle and I need to know I’m doing OK. When I meet you in Heaven, the only thing I want to hear You say is, “Well done daughter. You were faithful to carry out the task I assigned you. Good job!” That is all I really want, Lord. I desperately need to know I’m doing enough.”

According to national statistics about 29% of the adult population cares for an ill or disabled family member. Full time care-giving is a solitary mission field, with few furloughs. Some people choose it as a career, work eight hours, collect a paycheck and go home. But for family caregivers it is literally about laying aside their own life, putting personal hopes, dreams and ambitions on hold, often indefinitely, for another. This act of love requires daily unselfish sacrifice performed by flawed and innately selfish people…like me.

There’s a constant challenge of balancing my son’s needs against what I want and need and dealing with the tension and guilt this can bring, and it often feels like I’m never enough. So I prayed this prayer, gave it all over to God’s capable hands again and went on with my day.

Later, after arriving home, I changed clothes and left for the restaurant where Jon had gone with his caregiver, to relieve her of her duty. Once there, she informed me the manager of this buffet style restaurant was not happy about my son’s presence in his establishment. He kept sending the waitress over to tell her she wasn’t watching Jon properly and Jon was taking too much food.

Neither was true, never mind the fact it was an all-you-can-eat buffet. I spent the next few hours dealing with the customer-service-inept manager and his sidekick waitress, until Jon finally finished and was ready to leave.

On the way out, Jon stopped in the entrance area to check out the arcade machines. As I waited for him, a man standing near the front door approached me.

“Is that your son?” he asked, pointing toward Jon

I replied by a yes-nodding of my head.

“Well, I don’t know what this manager’s problem is but I’m so sorry for the way your son was treated here. What’s his name?”

“His name is Jon, and thank you. I don’t think we’ll ever come back here again.”

The man looked at Jon then back at me. “Me either,” he said with disgust. “The manager was even going around to some of the customers complaining about Jon, telling them he shouldn’t be here. I finally told him to leave your son alone. I didn’t see him doing anything wrong, other than being slow and that’s no big deal.”

I smiled and thanked him again as his wife came out of the restroom and joined us by the door.

“Look,” he said, “the real reason I wanted to talk to you is because I felt I should tell you something. I don’t know you or anything about you and your son other than what I’ve observed here today, but I felt strongly I should tell you…that God wants you to know…you are an amazing mom, you’re doing a good job with that young man and God is pleased with your faithfulness.”

By then I’d forgotten all about my morning prayer but this man’s words mirrored my own so exactly that I immediately started to cry. Then these two strangers put their arms around me and prayed for me right there, outside that horrible restaurant, prayed for me to have the strength and wisdom I needed to continue to care for my son and for Jon to fit perfectly into God’s plan for our life.

God, in his mercy and kindness, didn’t make me wait for Heaven to let me know He has everything I need to accomplish my task. He heard my prayer and cared enough to whisper His reassurance into the heart of a willing messenger.

On the hard days, I remember this and think of how much God loves me, enough to tell me…

In Him, I am enough.

And that is all the appreciation this overtime mom will ever need!

Isaiah 49:28-29 “Do you not know? Have you not heard? The Everlasting God, the LORD, the Creator of the ends of the earth does not become weary or tired. His understanding is inscrutable. He gives strength to the weary, and to him who lacks might He increases power.”

Matthew 25:23 “Well done, good and faithful servant. You have been faithful over a few things; I will make you ruler over many things. Enter into the joy of your Lord.”

 

A Beautiful Thing

 

My friend was married a few days ago. As ‘best woman’ I stood with her, my heart about to burst for joy,  knowing what a long, long walk it was to that ceremony. Me and Glee wedding

And I’m not referring to the stroll from the parking lot of the New Hampshire state park, up the frost-heaved sidewalk, onto pine needle dusted soil and down the center of the outdoor pavilion to a wall size fireplace, where the wedding took place.

I’m talking about a lifetime of hurt, pain, shame, guilt, addiction, rage and change.

We are often victims of man’s free will. It’s natural to recoil when wounded, especially when the hurt isn’t our fault. Then reactions become decisions, piling up and building insurmountable walls of defense.

During the past twenty years I watched my friend kick, scream, cry, fight and forgive for a hard won freedom. She was willing to do what it took to excommunicate the demons of her past and experience an internal peace and liberty.

She faced every challenge head on. It wasn’t easy. And required unusual determination, endurance and more time than most are willing to wait.

I was privileged to walk beside her for most of the process.

We talked, laughed, prayed and cried through many hurdles as she gave in and gave up to the beautiful grace of God at work in her heart, over and over and over again. As the years flowed by I watched a slow but amazing metamorphosis; a hard, angry heart turned marshmallow soft, a dry lump of clay gently crafted into a useful vessel of outpoured love.

The butterfly has emerged from the dark days of the cramped cocoon to fly freely into joy.

There is no sin, no shame, no wound, no hurt, no scar that the merciful love of our Heavenly Father cannot heal when we surrender our life to Him. He takes any and every broken and yielded piece of us and makes it new. He restores all damage, makes us whole, forever erasing the pain of yesterday.

When God renews, old things are passed away, sorrow and ashes turned into beauty. We are raised up to a life filled with promise and a future full of hope.

I’ve watched and tasted this. In myself, in others and especially in my beautiful friend who at long last has been restored to love and trust; so evidenced by the large and diverse group of people who came to celebrate this special day. God’s love was tangible, undeniable, surrounding all of us.

Knowing we are loved changes everything.

My friend finally knows, without a hint of doubt, she is valuable and she is loved.

Of utmost importance, by God.

Also by others.

And by the incredible guy who took her as his bride.

Freedom is such a beautiful thing.

     John 10:10 “The thief’s purpose is to steal, kill and destroy. My purpose is to give life in all its fullness.” ~Jesus

     2 Corinthians 3:17 “Now the Lord is the Spirit; and where the Spirit of the Lord is, there is liberty.”

     Luke 4:17-18 “..the scroll of the prophet Isaiah was handed to him [Jesus]. Unrolling it, he found the place where   it is written: “The Spirit of the Lord is on me, because he has anointed me to proclaim good news to the poor. He has sent me to proclaim freedom for the prisoners and recovery of sight for the blind, to set the oppressed free..”

     “Everyone wants to change the world but no one thinks of changing himself.” ~Anonymous

Why I’m Not A Role Model For Inspiration

inspiration-cover I started writing about our life with Jon approximately eight years ago

He finished school in 2002 and came home full time. Over the next few years he tried several full time and part time jobs but was continually ‘let go’. He doesnt stay on task without constant supervision, we were told.  Then came the work centers and day programs, which he hated. The only thing we couldn’t try was moving him out into supported living or residential placement. There wasnt enough funding for that.

Having Jon at home worked out well for a while. We had plenty of help at first; our friends from Maine who wintered in the back house on our property in Kissimmee, Florida, another friend from New Hampshire who lived with us for a year, our youngest son who was always willing to be extra eyes and Mike, who was working from home at the time and was usually available to watch out for Jon if I needed to go out.

Then one by one the extras faded away. The friends from Maine, now in their golden years, had too many health problems to travel and my other friend moved back north when the cancer she’d been battling returned. David went away to college and a few years later Mike sold the business, took a position away from home and started leaving the house every morning.

Suddenly it was just me…and Jon.

At first, I tried taking him with me to the places I needed to go – shopping, the gym, to run errands – but his constant resistance clearly stated that he really didnt want to do those things with me. Every outing attempt became a slow motion drama of frustration and tension between us.

For all Jon is and does that is amazing and wonderful, he is equally obstinate. I quickly realized that everything I needed or wanted to do away from home was now next to impossible

That was a difficult time for me. The adjustment of becoming a full time caregiver left me feeling trapped, resentful and alone. I was overwhelmed with how restricted my life had suddenly become and dealt with constant guilt for feeling that way. I cried, prayed and begged God for a solution.

Then I started to write. At the time, it was one way I could keep my sanity. I was desperate for my adult son, afraid for his future and discouraged about my own. Some of those early writings no one has ever read, they are SO honest and TOO vulnerable – my broken heart spilled out on paper.

Eventually I began to share some of the lighter pieces with friends and family. They loved them and encouraged me to write more and make them available to others. Social networking and inexpensive or free websites, and easy blogging for technology “dummies” like me, gave me a place to share my words with anyone who cares to read.

So here we are today. A few things have changed since then.

We moved closer to Mike’s work so he’s home more. We have caregivers that come in a few times a week to provide respite so I can go to church and out with my husband now and then.

But the biggest change is inside ME.

I have also come to understand that I can not want for someone, what they dont want for themselves. Jon is content being home so I am learning to be content with him. Im adjusting better to my confinement. Ive discovered more about unconditional love, grace and self-less-ness in these years than I could ever experienced in a lifetime.

I confess to having days when it’s hard, when I want to be selfish, when I want to do what I want, when that voice in my head tells me, “You deserve more, everyone else is coming and going as they please, but not you.”

But as the Apostle Paul said in Philippians 4:11, for I have learned to be content whatever the circumstances. Learned is the key word here.

This contentment-in-all-things, isn’t automatic. It’s a process and Im still learning.

My life is still scheduled around Jon and when I do take him out, it’s always about him, not me.

And I still writefor me. I’m continually ‘preaching to the choir’, so to speak, and I am the choir!

Everything you read is to remind me that it’s OK, I’m OK. Jon’s OK. Life is good. We’re going to be alright.

People tell me often that I inspire them. I am thankful for that even though I don’t feel like a role model for inspiration at all.

Life here is different, yeah, even weird sometimes, but God is faithful and He has a plan A. It might not be my plan B, C or D, but it’s alright to live it the best I can, laugh about it sometimes, pray about it all the time and cry occasionally over what is not.

If you’re inspired by any of that then I’m grateful for the bonus of being a blessing in the middle of my unusual life and also in the middle of yours.

Maybe sharing this helps all of us. Maybe when we are open and honest with each other it releases us from the dangerous deception of charades and perfection, allowing us space to be who we are and where we are on this life journey.

Just maybe, we can peel off the mask, look one another in the eye and admit, “This is me, this is you. Life isn’t perfect or even normal, but let’s walk it together and be inspired by what God can do in, for and through those who are called according to His purpose in Christ Jesus our Lord.” (Romans 8:28)

The glory of God shining out of our frailty, weakness and humanity…

Now that’s inspiring!

Romans 8:28 “And we know that all things work together for good to them that love God, to them who are the called according to his purpose.”